Our
Mission

Grand Charles aims to:

Support the search for a vaccine against herpes encephalitis by leading a strategy of innovation and general interest that benefits all those involved in care.

The Association thus creates and develops tools that make
advance the understanding of the disease, the development of innovative therapies and their application to humans. Its principles of action: innovation and therapeutic efficacy.

Help patients and families to carry out their life project, while waiting for treatment. With this objective, the Association leads a fight for access to diagnosis and care adapted to local support, by favoring the search for innovative solutions and the response to the needs of patients.

Communicate by carrying the voice of sick people and caregivers and thus mobilize as many people as possible to advance the fight. This communication aims to improve knowledge of this very rare and largely ignored disease, to share and explain advances in research and therapeutic progress.

Founded by Edouard Bieth, Eve Bieth, Anne Laure Rochery and Renaud Martel, the Grand Charles Association took on its full meaning when Charles Bieth, the second son of Eve and Edouard suffered from herpetic encephalitis at the age of 4 months and then a second at the age of 4 years. Charles' parents, godmother and godfather have decided to act together and with the scientific and medical community in order to alert other parents, support affected families and above all accelerate the search for a vaccine against herpes.

Our Board

The Bureau of the association is made up of the father, the mother, the godmother and the godfather of Charles. It is completed by our honorary members, all from the medical community (neuropaediatrician, immunologist, nursing staff, etc.).

Edouard Bieth, President

Edouard is married and the happy father of 2 boys. His desire to pass on to others is infectious and he has been committed for nearly 20 years to patients and support for healthcare professionals through his career as a leader in the pharmaceutical industry. President and founder of Grand Charles, a biochemist by training, a graduate of HEC and the London Business School, his mission is to raise funds from health actors in order to help find a vaccine and support families affected by the disease. herpetic encephalitis.

Eve Bieth, Vice President

Eve is a physiotherapist specializing in the care of women with breast cancer. Passionate, her expertise allows her to accompany patients to rebuild themselves physically and emotionally. Mother of 2 children, she recognizes the impact that the disease can have on the lives of patients and their loved ones. Her role as vice president will be to raise awareness and support for families of patients, but also to help scientific and medical research.

Anne Laure Rochery, Treasurer

Anne-Laure, mother of 3 children is Charles' godmother. Through her profession as a chartered accountant, she accompanies companies and their managers on a daily basis in their life and their economic development. She takes to heart her role as treasurer to support the Grand Charles association in its accounting, administrative and tax management, but also in the search for funds necessary for the development of its missions.

Renaud Martel, General Secretary

Renaud is the father of three boys and the godfather of Charles. A graduate of HEC Paris and specialized in entrepreneurship, he has created and developed several companies, particularly in the field of disability and accessibility. Particularly sensitive to the subject of childhood disorders, he wishes to put his experience at the service of the Grand Charles association to help it become known, develop and finance itself.